Who are Your Angels?

Our guest blogger this month is an ovarian cancer survivor who was an incredible human being prior to cancer, and yet has used the opportunities through cancer to continue to grow in so many wonderful ways.

I believe it is how she chooses to see the world around her and how she chooses to interpret the events around her that have and will continue to make the biggest impact on her post-cancer life. Feeling empowered to be the writer of her story is critical.

Do you feel empowered to be the writer of your story? If not, how can you start to feel more empowered?

-Polly

When my angelic friend Polly asked me to write about my survivorship from advanced stage ovarian cancer, I was very excited because I had so many stories that I wanted to write.   But when I sat down to write, I realized it was not easy.  There are so many stories around my survivorship  -  I only want to share the one that impacted my survivorship the most!  This is the story that turned a disease around for me into a gift: the gift of life! The Gift of seeing, smelling, wanting,  loving, forgiving, healing! The gift of connecting, losing, finding and much more.

I was on the top of my world when I was diagnosed with cancer. I was IN LOVE with my soulmate.  My son, whom I had raised single handedly as a new immigrant from a far land in war, had just become a beautiful young lawyer.  I was starting to have more financial freedom in my life, after 52 years of good and struggles!  I was physically fit (did I say “the top of my world!?”)

The cancer news came on Wednesday March 2nd.   After I found out, I had to share it with my friends and family.  My family lives scattered around a few states in the US, and countries around the globe. I had to gather myself to tell my only son, who lives in Florida; the one who had told me many  times, “mom you are my rock, my earth, the only person on the planet that I do truly count on” – and I am all he has in this universe.  I also had to tell my brother; he is only two years older than me and had already survived supposedly terminal cancer twice.  He has been in remission for the last 6 years !!  Finally, I had to tell my soul mate. We just finished planning for a life together on a beach house, somewhere simple and warm.

On march 3, I received two very important email replies, the first from my survivor brother who is a scientist himself.  He never says much, and you can count on what he says.   The 2 line email said: “I had to sit down when I got your email – I am shocked!  My only suggestions to you are: don’t under estimate the power of your mind, AND no matter what they say, don’t lose your cool! “.  His very simple suggestions helped me find a peace, a cool, a calm that I still haven’t lost .

The second email which came at exactly the same time as my brother’s e-mail – as if angels are at work harmonizing everything – from another survivor friend only 6 months a head of me.  It said: “avoid the Internet at all cost“.  God, she was so right.  The day I got the news about my cancer, I opened my laptop and googled  ”ovarian cancer”; the first thing I saw in large bolded print was “ovarian cancer is fatal.”  I immediately shut the laptop and said to myself “no its not!”  I sat there and thought to myself “It can’t be.  No  - I am in love!  I am happy!  I am all my son has.   NO this is not my story – my story is not ending now !”

Even though I ended-up losing the love of my life after surgery, I didn’t lose the spirit and the inspiration of his love.  The heartbreak did not compromise my faith or my belief that I am in charge of writing my own story!  With that mentality, I was able to manage and accept my cancer, and I was an exceptional patient in the face of 5 months of very hard of chemo every week.  After the Chemo, I became a success story!   There were many moments that I was taken over by my ANTs (All  Negative Thoughts) – however, the love of in my heart and positive thoughts in my head always prevailed!

I still don’t read anything about ovarian cancer unless is sent to me by a trusted source.  And still I only read about the cure, not the disease.  The best part of the story is that throughout the entire process, angels kept showing up everywhere, from my surgeon, Naturopath, and Acupuncturist, to my friends and family – angels were everywhere, acting in harmony to support me and help me write my own story.

I have never felt this vibrant and alive and connected and happy and healthy in my entire life as I do today.  I have never lived life so fully and with so much  intention and light heartedness!

I am putting as much stamina and commitment into enjoying life as I did when I was reclaiming my life! As they say,  I am learning to live my best life every day!

Believing in angels, having the burning desire to be the writer of my own story – not having cancer write it for me – and keeping the zest to love life changed the course of the disease for me!

This is my story and I am sticking to it :)

Posted in advocacy, Attitude, Chemotherapy, Ovarian Cancer, Survivorship | Leave a comment

Parenting with Courage in the Face of Cancer

Below is the second of several guest posts to Survivorship Partners’ blog.

We all know that life is full of uncertainty; but when one is facing a potentially terminal cancer diagnosis, uncertainty takes on a whole new dimension. Cancer can teach us important lessons: learning to embrace life fully, while living with an uncertain future, is one of the most difficult but valuable of these lessons.

Parenting as a cancer survivor is undeniably one of the most challenging aspects of living life with uncertainty. This month’s guest blog post is written by Marolan, a young woman who has capably and admirably raised her daughter while living life in the face of stage IV cancer. She has embraced it with unending and incredible courage and determination.

- Polly

Spring showers, sunshine breaks and snow have been the norm the last couple weeks in the Pacific Northwest. Typically we don’t see snow this late in the season, just drizzly showers intermittent with bursts of sunshine that beckon the winter-weary out of doors.  This year I’ve been holed up inside, watching gale-force winds rip through the swaying, enormous Evergreen trees in the neighbors’ yards, hoping they don’t fall on my house.

Today as I drive to pick up my daughter from school the skies change from sunshine to snow to rain to sunshine all in the course of 15 minutes.  Hannah is wet from head to toe just from running from the school to the car.  She simultaneously dumps her backpack in the backseat and plants a kiss on my cheek.

If I were to compare the teen girl Hannah is now to the girl I hoped she’d be when she still had that new-baby smell, it’s surprising how closely the two align. Until recently, I was certain I’d failed her in life’s most important ways.

I believe most people begin parenting with not only the best intentions of what kind of parent they will be, but also knowing what kind of parent they won’t be.  My brother and I were raised in Texas  by an extremely hardworking mother, and by our scientist dad who is a happily self-professed workaholic.  I think every child has things in life they want to do differently with their own children.  I had my list for Hannah: no one else would raise her, so she would never be in day care; she would spend her childhood just being a kid who felt loved and protected; and, lastly, she could form her own spiritual beliefs.

When Hannah was four months old, we began the process of moving from our tiny 910 square-foot, first-time-buyer’s home, to a bigger, more family-friendly one.  My husband – a gentle, “suffering musician” type –  and I met when I was just 18 years old.  At 31, with the new baby, a new home, and a healthy marriage I was the happiest I’d ever been.

Shortly after we signed the loan documents, my husband began the slide into a soul-crushing depression.  Nearly three years later I was diagnosed with cervical cancer and I found that our combined illnesses exceeded my capacity to take care of my marriage, Hannah and myself.   I got a radical hysterectomy, and sadly, a divorce.

I’d never lived on my own before marriage, and suddenly I was a single mom who desperately needed benefits and an income to support us both.  The transcription business I owned had been ‘feast or famine,’ but there was not enough feast to get through the famine months.   I got a good job at a large technology company, and placed 3-year-old Hannah into a Montessori School full time (also known as day care).  I felt like I’d failed her.  Eventually I was able to drive to work dry-eyed, but I never did shake off the feeling of failure.

The next four years were a battle between the strict demands of my company, and my own for being a great mother.  Every moment I was not working we were at the zoo, on nature hunts, and learning about life.  We made a happy pair.

When Hannah turned five I met Alex.  He was a gentle, computer-savvy gentleman, with a sexy English accent. Hannah was with her dad, so I agreed to a first date on Christmas day.  Alex asked me to meet him at a local Italian-themed restaurant (oddly owned by a Ukrainian family).  When I walked in the bar,  it was at full capacity with over 40 Ukrainians singing and dancing, and this wonderful Englishman was staring captivatingly at me.  My friends say this guy must have been something special when I introduced him to Hannah a week later – I never introduced her to anyone!  One year later we decide to make our little family official.  Life was perfect.

Following our honeymoon I was anxious to get back to work to hit deadlines.  The back pain I’d been plagued with for the past three months was so unbearable I couldn’t find a comfortable position.  I gave up in frustration and went home to work on the floor.  After two weeks with no improvement, I went to see my GP, who ordered an MRI and called me the following day.  I had Stage IV cervical cancer.  A tumor the size of a grapefruit was squeezing my sciatic nerve like a balloon animal. It was inoperable.  It had been 4 ½ years since my surgery, and I was supposed to be celebrating 5 years of being cancer free in just six months.  How could this be?

The doctors said I was young and strong, so they were going to hit me with everything they’d got in their arsenal.  I began chemotherapy and radiation, and alarmingly, a Hospice nurse began visiting me on alternate Wednesdays.  I reluctantly turned Hannah’s care over to my mom and Alex, to friends and caring neighbors. Hannah was told, “Not now, honey, Mommy isn’t well,” and, “Quiet down, sweetheart, your mother is sleeping.” They did their best, but she felt pushed aside.

This was not the care-free childhood I’d envisioned for Hannah.  That feeling of failure was nagging at me again, and I was too sick to do anything about it.  I spent all my time trying to eat and drink only to throw it up again, out of my mind in pain.  I needed some control in my life, so I asked the Hospice nurse if she could stop coming because she made me nervous.

Five months into therapy I experienced complications and had what was called a “near-death experience.”  Somehow, that brush helped me turn a corner. I had to move my body so I could be here for my girl.  I decided to start walking.  At first, I couldn’t make it down our short drive. Hannah happily joined me for my “shuffles” (they weren’t fast enough to be called a walk), and escorted  me back to bed.  Then we’d have another go an hour later. Within six months I could walk around the block four times!

Our walks turned into a special time between us to talk about life, laugh and act silly. Late summer we always stopped at the same blooming honeysuckle, taking turns picking the bright yellow flowers and placing them on our tongues for that brief taste of sweetness.  One fall day we passed the honeysuckle out of season, its brown vines covered with crunchy dried leaves, when she confides, “Mommy, I don’t believe there is a God.”

I was speechless.   I know she’s been praying for me.  She’d been given a prayer jar with little pieces of pastel paper to write on, and a tiny pencil that fits inside. She’s scribbled, “Please help my mommy not be sick anymore,” and “please cure cancer,” before tucking them safely back inside the little glass jar and screwing on its silver lid.

I tried to imagine how she must have felt.  She’s only 7 years old, and her mother was a walking skeleton, bald, and frail.  Of course she felt like her prayers hadn’t been answered!

I was raised in a scientific home.  Bringing up a spiritual matter was often tantamount to picking a fight. Yet I always believed in something greater than what I could see.  Time and time again I find life’s most important lessons spring from times of misfortune. I often shared these insights with Hannah, always pointing out life’s complexity, its beauty.

It never occurred to me that she would conclude that there was no God at all.  I told her to be patient; but I felt like I’d failed her again. Should I have provided her with a more formal religious foundation?  In my desire for her to have the freedom to explore her spirituality, perhaps I was too vague. My own beliefs had deepened during my fight with cancer.  I decide to trust that Hannah had her own path. I would continue to teach her what I believed, but left it to her to decide what spoke to her own soul.

Hannah remained patient, and kept a hopeful cheeriness that brightened everyone’s day. After a year of treatment, my body finally went into remission.  We were all overjoyed! Alex and I began the journey back from caregiver and patient to husband and wife, I became a fulltime mother, and Hannah was grateful to have normalcy in her life once again. Soon I was strong enough to go to dinner, on family vacations, and truly enjoy life.

Time flied, as it tends to do when life is going well.  It was little more than a year later when the cancer came back inside the sacrum, weaving a snaky path through the gluteus and periformus muscles.  My doctor told me I’m terminal.  I found another doctor.

When Hannah learned of the recurrence, she was truly devastated.  At the tender age of 8, she still envisioned us living together when she grows up (she will use her money as a lawyer, airline pilot, and cab driver to pay for a big house; she will live on one side, and Alex and I on the other).  Just then, in this precious space in time, I was her world.  But Hannah was older and understood just how bad cancer could get.  I told her I would fight the cancer monster again and that I would beat it. Even as the words left my lips, stated as fact, I wondered if I could indeed beat it.  Who survives cancer three times, and lives to tell the tale?

Around four months into chemo I was hospitalized for an electrolyte imbalance. They ran a PET/CT scan to see how my therapy was progressing.  The following day an old friend stopped by to visit.  We were laughing, reminiscing about the crazy days we worked together, when my doctor tapped lightly on the door-frame, and asked if he could speak to me in private.  He closed the door, and turned back to me with wet eyes and said, “The cancer is gone.  We don’t know where it went.”  He was baffled.  The cancer had simply disappeared.

Recently Hannah and I were oohing and ahing over the start of the blooming cycle for azaleas. The first ones are always purple, then red, yellow, blue, white, and more, bursting in bloom like fireworks, one after another.  I watch my growing girl run ahead to do a cartwheel on the neighbor’s lawn.   I smile and wonder at the miracles we call children, and their ability to overcome obstacles life throws in their way.

I remain in awe at all Hannah has been through in her short life.  She’s been watching me fight cancer for the last decade, yet she hasn’t lost her sense of humor or that silliness that I love so much. Being in daycare didn’t change the fact that she has a kind and honest heart.  Having those diverse set of caregivers taught her life lessons I never could have, and have made her a better-rounded person.

She runs back to me, and as we walk past the dry honeysuckle branch her hand slides comfortably into mine. It’s still months before it blooms yellow and sweet, the fragrant flowers tumbling up and over the fence onto the ground.  Hannah squeezes my hand and says, “Mom, I’ve decided the universe is just too perfect not to have something behind it.  I do believe in something greater, I just don’t know what that is yet.”  I put my arm around her shoulders, give her big squeeze, and tell her she is great.

She is finding her path! It turns out that I didn’t fail her in the least.

Posted in Cervical Cancer, Chemotherapy, Parenting | 3 Comments

Toom-ah? What Stinkin’ Toom-ah!

Below is the first of several guest posts to Survivorship Partners’ blog.

Jessica is a walking definition of advocacy and really illustrates how vital being proactive is in survivorship.  What can we learn from her in advocating for yourself or your loved one?

- Polly

What does it mean to advocate for yourself?

It means survival.  Unfortunately, in today’s medical maze, there aren’t many successful treatments for my type of cancer.  I’m fighting a malignant brain tumor, and the replication of those nasty cells progress faster than current healing science.

According to the traditional system, my treatment plan is supposed to go something like this: brain surgery, radiation, chemotherapy, another brain surgery, maybe another type of chemo, and then an agonizing death while my body and mind degenerate.  Sound like fun?  No.  Nope, the outlook is horrible.  Is that acceptable?  No!

If your doctor doesn’t have the means to help you survive, it is your duty to look toward other options.  You have to fight to survive, which is heartbreaking because those with these death sentences are exhausted and beat down already.

At first, I believed my doctor’s words and thought that there was nothing I could do.  My very prestigious neurosurgeon and accomplished radiation oncologists both said that I could eat whatever I want.  They said I should live my life however it makes me happy.  It sounded nice.  I was set to sustain on red licorice, peanut M&M’s, sourdough bread and glorious full bodied red wines.  Yum! But, something didn’t sit right.  It just didn’t make sense that my food choices didn’t matter.  I mean, wait a minute, I had heard that you are what you eat?  If food is fueling my body then it doesn’t make sense to load up on junk.

I realized that there was so much that I didn’t know, and I decided to figure out more about what causes cancer and what feeds it.  Then, here and there, I kept hearing stories of survivors of brain cancer.  There are only few, but I realized that those few have valuable keys to survival.  That became my new goal, copying survivors.

There is so much that you can do, including supplements, diet, exercise, meditation, clinical trials, etc.  When I came out of my brain surgeries (there were two consecutive) my doctors told my family and me that I have a 1% chance of surviving this cancer.  Scary!  At least it sounded scary, but once I started researching alternative treatments I realized that I can increase my survival by several or tens of percentages.

You can not be afraid to do hard work.  You can not give up (except for once in awhile when you really need some ice cream).  Each cancer is different.  Become an expert on your diagnosis, on the treatments, on the survivors, on the diet, on the mechanisms of cancer cell division, of how the cancer feeds itself, and what the cancer cells are comprised of.  I know it’s a lot and it takes an incredible amount of energy, but that’s what friends and family are for.  Don’t be afraid to delegate.  People want to help you, they want to see you survive.  Everyone loves the underdog!  Yes, you are going to be exhausted, and sometimes you won’t want to go on, but you have to.  You need to.  You must.  You can do it!

You must be your own advocate.  If a treatment doesn’t feel right, or if the risks outweigh the benefits, you don’t have to do it.  For example, my radiation oncologist has been trying to force me into doing radiation, even though he admits that it will not extend my life and that there are very serious short and long term effects.  You are a customer in the medical system.  Your surgeon, your oncologist, your radiation oncologist, each nurse, they all work for you.  I’m not recommending that you give off an attitude because that’s just unnecessary and rude. But keep that in mind while you are in appointments.  You deserve to be treated with kindness and respect.  This is your body, your life, and your survival.

If you want to survive, and I believe that we all have the ability to do so, advocate for yourself.  It’s the biggest challenge you will ever face.  Contrary to common belief, you’re not fighting the medical world, you’re fighting yourself.  Once you stop fighting against your sadness, or disappointment of your illness, you can dust yourself off and decide that you are your best treatment.

Posted in advocacy, Brain Cancer, Nutrition, Radiation, Research, Surgery | Leave a comment

A New Way of Living for 2012

A cancer survivor friend of mine said something the other day that really stuck with me.

She said: “It’s time to put as much work and stamina into enjoying life now as I did defending it!”

Some might say that while making it through treatment is no small feat, once treatment is over, survivors often feel lost and abandoned.  It’s counter-intuitive to what most of us expect.  We can’t wait to finish treatment and while there is a huge sense of relief when treatment is over, often post treatment can bring increasing worry about recurrence.  While in treatment, we have a task at hand and are actively engaged in defeating their cancer.  After treatment is over, it often becomes a “watch and wait” scenario.

The late Dr. David Servan-Schreiber describes a post treatment discussion with his physician in his book, ”Anti-Cancer”.  Once his treatment was over, Dr. Servan-Schreiber asked his oncologist:  ”What should I do to lead a healthy life and what precautions could I take to avoid a relapse?”

“There is nothing special to do.  Lead your life normally and we’ll do a MRI scan at regular intervals to see if your tumor comes back and we’ll detect it early” was his physician’s answer.  Not an uncommon response but one that can often leave survivors feeling helpless.

In fact, there is so much that survivors can do.   They can become active participants in their health and be empowered to make a difference in their own survival by the choices they make every day. The key is to avoid a feeling of helplessness.

The best way to overcome the fear is to get busy living!  Combat the anxiety with choices that will positively impact your health while at the same time improve your quality of life.  The issue is not about motivation, but about understanding the impact of these choices on one’s body, mind and spirit.  Survivors give 150% effort to their treatment.  Why not give that much effort to living life and thriving after treatment is over?

So no matter the length of your survivorship, it’s never too late to get started.  Instead of having absolutes to follow, I offer a few guiding principles to consider for 2012 that might add years to your life and life to your years!

1.  Food as Medicine.

“Let Food be thy Medicine, and Medicine be thy Food”        Hippocrates

Instead of believing that food’s main purpose is as an energy source, consider that food really is the most important medicine that nourishes each cell in your body.  Providing more than energy, healthy foods create the right “terrain” for good cells to flourish and bad cells to die.  I subscribe to the 80/20 rule knowing that no one is perfect all of the time.  Try it guilt free.

2. Practice Gratitude

“Be happy for this moment. This moment is your life.”   Omar Khayyam

One thing, I have learned from cancer is that life doesn’t come with any guarantees and is full of uncertainty.  Practicing gratitude takes practice!  It can really rock your world once you start to see things in a more positive light.  If you are struggling to be grateful, keep it simple.  Think of very basic things to consider; gradually you will build on the basics and it will become easier.

3. Live consciously in the present  moment.

“The key to life is not the number of breaths you take, but the number of the moments that take your breath away.”   Anonymous

Life goes by fast, and it seems to go faster and faster the older I get.  There is no time like the present to get connected to your spirit.   Download a meditation app or try a class.

4. Move your body.  Exercise is vital to cancer survivors, can reduce recurrence, and improve survival rates.  The benefits of exercise for cancer survivors are amazing.  Imagine decreased fatigue, pain  and stress.  Exercise improves sleep, mood and cognition; not to mention reducing  the risks of heart disease, diabetes and other chronic health issues.

5.  Sleep improves just about everything.  Getting  8 hours of sleep each night can help keep cortisol  (stress) levels balanced, which is good for your body, your immune system and your brain.  Enough sleep on a regular basis can really improve your coping abilities.  Sleep recharges your brain and gives you the energy to do what you want to do.

6.  Reduce the chemicals and toxins in your life.   What’s good for your body is good for the environment.  Start with buying organic produce,  or meat and dairy when and if possible.  It’s easy to get overwhelmed  and – the key to success is to take it slowly.

7.  Feel the love in your life.  There is nothing like a cancer diagnosis to learn who your “peeps” are that love you.  Don’t forget to show them that you care, even after your treatment is over.  Post treatment can be when many survivors need the emotional support more than the physical support.  Let them know that even though things may be improving physically, things may be tough emotionally.  Give yourself permission to ask for what you need in your life.

Dr. Servan-Schreiber believed that the very things that can lengthen your life can also help you to feel good and enjoy life.  Fear is hardly a good motivator; instead, feeling well in body, mind and spirit are the best ways to stay motivated for the long run.  So now is the time to become an active partner in your health.  Take back control…..It’s a new way of living!

Posted in Environment, Exercise, Lifestyle, Survivorship | 1 Comment

Rachel was Ahead of Her Time

I think Rachel Carson would have been pleased with the most recent report and recommendations from the Institute of Medicine (IOM)  that was released last week.   This report reviewed the evidence on the environmental causes of breast cancer.   It emphasized that we must pay attention to certain environmental exposures which may be contributing to the causes breast cancer.  According to the Silent Spring Institute, “in the context of U.S. breast cancer institutions focused on mammography and treatment, the recommendation for chemicals testing is a significant positive step for prevention.”

Who was Rachel?

Rachel Carsonwas a courageous scientist who helped to spark the modern environmental

movement when she published  “The Silent Spring” in 1962.   By bringing attention to birds that had become silent due to indiscriminate pesticide exposure, her report sounded alarms. Unfortunately, Rachel died of metastatic breast cancer just two years after testifying before Congress.

Since that time, there has been an explosion of chemicals introduced to most Americans with very little oversight and testing.  According to the CDC, most Americans have over 200 different chemicals in their urine or blood.   We have very few studies to evaluate the long-term effects from these chemicals.

This most recent IOM report concluded that women have many opportunities to reduce their risk of contracting cancer from environmental factors.  It identified some known risk factors for breast cancer such as estrogen-progestin hormone therapy, smoking, alcohol and radiation.  It also emphasized that increasing physical activity and reducing excessive weight gain after menopause can reduce breast cancer risk.

With regard to evaluating the effects of chemical exposure in our environment, the IOM acknowledged that evidence from human studies is often not attainable.  However,  we can’t wait for evidence that may be a long time in coming – or that we may never have – to take action.  This is where we need to employ common sense.

The “Precautionary Principle” advocates for common sense. This principle states that evidence of harm (rather than definitive proof of harm) should prompt policy action. We can’t wait until we have conclusive evidence in human studies that we may never have.  We can begin to enact changes about the choices we make every day in our work places, our homes and in our everyday lives that could have a profound effect on our health.   Ask yourself- what’s the harm?

Beyond the IOM’s Report- Reducing Environmental Exposure

Beyond the IOM’s recommendations, The Silent Spring also offers this one page guide to approach environmental exposures.  It could be very easy to drive yourself crazy trying to avoid every potential carcinogen.  My best advice is to stick to a few guiding principles and keep it simple.

Here are 4 areas to consider when thinking about reducing your exposure to environmental toxins:

Dry Cleaning.  There are many chemicals used in dry cleaning, but the most famous one that has been around the longest is PERC.  According to the EPA, laboratory studies show that PERC causes kidney and liver damage, as well as cancer in animals exposed repeatedly by inhalation.  Repeated exposure to large amounts of PERC in the air may likewise cause cancer in humans.

A good option is to limit the amount of clothing that you have that requires dry cleaning.
Wet wash as many of your clothes a s possible and buy clothing that doesn’t have to be dry cleaned.  If you do have to dry clean, try to use a toxic free dry cleaner such as Blue Sky.

If you do use a traditional dry cleaner, try unwrapping your dry cleaned clothes when you get home and airing them out.  If you take the plastic bag off inside your house, the PERC just goes into the air where it can last up to a week.  So, it’s better to air out dry cleaning in an open garage or outside.

BPA is synthetic estrogen and is in many plastics containers like water bottles and baby bottles.    Purchasing BPA-free water bottles and using glass containers for food storage are simple changes that doesn’t cost a lot, but can reduce BPA exposure.  Other suggestions to reduce BPA exposure include:

  • Don’t microwave polycarbonate plastic food containers.   Polycarbonate is strong and durable, but over time it may break down from overuse at high temperatures.
  • Plastic containers have recycle codes on the bottom. Some, but not all, plastics that are marked with recycle codes 3 or 7 may be made with BPA.  Avoid recyclables with these codes.
  • Reduce your use of canned foods – most cans are lined with BPA
  • Where possible, opt for glass, porcelain or stainless steel containers, particularly for hot food or liquids.

Cosmetics and personal care products.  As a general rule, choose cosmetics without phthalates and parabens that can mimic estrogen and are classified as endocrine disruptors.  This is a difficult task for often these chemicals are not labeled.  Consult the Environmental Working Group (EWG) website to get more information about products.

Foods.   Buying organic products is typically more expensive than conventional products; but there are some guiding principles that can help to make your choices easier

Dairy and meat concentrate harmful compounds – so buying organic, hormone free is critical.

Studies have proven that  80% of pesticide residue can be eliminated by choosing organic produce.  To minimize your exposure, consider consuming this list of organic produce:

  • Vegetables:  Bell peppers, spinach, celery, potatoes, lettuce, spinach, green beans and winter squash.
  • Fruits: Apples, cherries, grapes, nectarine, peaches, pears, raspberries and strawberries.

EWG provides a list of the dirty dozen and the clean 15.

Ahead of Her Time

Rachel Carson was clearly a woman ahead of her time.  Ninety percent of breast cancers do not have a genetic component , which makes a compelling argument to continue looking for environmental contributors.  While it’s easy to get frustrated with the speed of progress around breast cancer prevention, this IOM report is a step in the right direction.  There is still much work to be done, but I think if Rachel were here today, she would be pleased with the direction we are headed.

What environmental toxins are you removing from your life?  I want to hear from you.

Resources/websites

http://www.iom.edu/Reports/2011/Breast-Cancer-and-the-Environment-A-Life-Course-Approach.aspx

http://householdproducts.nlm.nih.gov/index.htm

http://www.silentspring.org/breast-cancer-and-environment

http://www.avoidcancernow.com/

http://www.ewg.org/skindeep/

http://greenliving.nationalgeographic.com/improve-indoor-air-quality-2811.html?source=glhottopic

Posted in Breast Cancer, Environment, Estrogen, Exercise, Research | 2 Comments

Don’t Worry – Be Happy!

Does Stress feed cancer?    Can we affect our ability to fight cancer by how we manage stress?Businesswoman Doing Yoga by Ambro

We can’t avoid stress; its a natural part of life.  But can’t some stress be good?   The right amounts of it can motivate us to be competitive and innovative.    Stress can affect us both emotionally and physically.  But too much stress can also affect our immune systems and ultimately our health in negative ways.  It can put us at risk for heart disease and cancer, and make us more susceptible to illness.  We all know that stress may have a negative impact on our health.  But you also know you’re never going to be completely rid of stress. It’s unrealistic to do away with all of life’s pressures – but the key is in how you handle them on a daily basis.

We have long understood that our mind and body are interconnected.  We know that our emotions and stress levels can affect our physical health.  The science behind what we’ve innately understood is beginning to catch up.

Studies About Stress and Cancer

A study published last year in The Journal of Clinical Investigation demonstrates how stress hormones such as adrenaline can directly support the spread and growth of malignant tumors.

This research team studied a mouse cancer model (yes – that’s correct).  After receiving a transplant of ovarian cancer cells, the mice were restrained in order to cause a physically induced stress.  The researchers then noticed that their tumors grew more rapidly so they gave the mice the drug propranolol, which blocked adrenaline, and in turn, slowed the growth of the tumors.

In another article published in the International Journal of Cancer this year, higher levels of norepinephrine and adrenaline were linked to increased rates of breast cancer spreading and growth.

Breast tissue contains a very dense supply of sympathetic nerves and is heavily exposed to adrenaline during times of stress.  It was first discovered by Canadian scientists that breast cancer cells do express receptors for norepinephrine which is released when one is stressed.  When these scientists carried out a series of laboratory experiments, they found that norepinephrine significantly increased the growth of breast cancer cells and increased their ability to spread to other parts of the body.

Reducing Stress Improves Health

We can’t control our genetics.  Nor will stress ever go away entirely.  But we can change how we respond to stress, since its not necessarily the stress itself, as much as the way people handle stress that may be linked to disease.

This was demonstrated in a seminal groundbreaking study by Dr. Speigel, a psychiatrist from Stanford who studied women with metastatic breast cancer.  He was determined to prove that there was not a relationship between length of survival after a metastatic breast cancer diagnosis and the emotional trauma or stress.  To his surprise, he found that the women who participated in the support group lived on average twice as long as the women who didn’t participate.   The more regularly a women attended the group, the longer she lived.  These women who had learned to confront their fears, express their inner feelings and experience relationships more authentically, were less likely to have depression, anxiety and even physical pain.

We are now beginning to understand that strong relationships, support and managing our stress have a real positive impact on our entire being.  We cannot separate out our biology from our emotion and spiritual self.  We are comprised of all of these facets, and each affect the other.  If we make a change in one area, we are affecting the whole self.

So science is beginning to catch up with what we have innately understood for a time.  The bigger question is how do we manage our stress and optimize our ability to optimize our bodies ability to resist disease?

Awareness is the first step to improving stress levels.  Tune in to your stress levels and notice patterns.  Some stress is ok; but if you are chronically stressed out, make some changes.  Even a little change can make a big difference.

Incorporate mindfulness into your everyday life.  Meditation does not have to take but a few minutes.   Find a class, download an app or discover yoga.  Meditate in the grocery line or at the red light.  Develop your spiritual muscle.  Live in the present moment.  Get connected with your community and reach out to others.  Find a hobby.  Exercise regularly and get enough sleep.   Pick one thing to focus on at a time.  It’s easy to get overwhelmed.  Don’t forget to laugh!

Cancer can be very stressful but the opportunities for positive growth and transformation through a cancer experience are abundant if we choose to look for them.  Don’t let being stressed stress you out even more.   Be empowered to make choices that improve your stress level and help your body to resist cancer and other illnesses.   Don’t let the cancer take control.  Who knows – you might even be happier and live a less stressful and more meaningful life – in spite of cancer.

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Moving Beyond Awareness to Breast Cancer Prevention

It’s that time of year when the world looks a little more pink.  Retailers decorate their stores with pink ribbons and the promise to donate a portion of their sales to the fight. There are the pink M&M’s. There are pink cereal boxes lining the cereal isle. There are pink ribbons everywhere. But what does all this pink really mean?

I received an email the other day, asking me to donate to a breast cancer foundation during October because it is breast cancer awareness month. In this email the organization stated that in this country, a woman dies of breast cancer every 13 minutes. The email went on to explain that a portion of the money they raised would provide funding for screening mammograms, because they believe that this is the best way to save lives. I don’t dispute that early detection is saving lives, but what if the emphasis was not just about screening, early detection or how well we treat the disease? It got me wondering: what if women understood how to prevent the disease in the first place?  How many breast cancer deaths could be averted?

For many women, breast cancer awareness is a reminder to schedule their mammogram.Walking Shoes   For others it can mean purchasing an item from a retailer with the hope that it will somehow help the cause.  For many of us, it’s a time to hear inspiring stories of survivors who found their own lump, then made it through a mastectomy and grueling chemotherapy treatments.   These stories are very compelling and these women deserve our admiration and praise.   But somewhere along the line, the end goal became awareness, and awareness simply became synonymous with prevention.  And although awareness can lead to increased screening, we should not stop there.

What if we changed the paradigm in which most of us see breast cancer?  What if we banded together – mothers, sisters, daughters and grandmothers, aunts, and all of those that love us  – and demanded that we do more than just be aware.  What if the message was about how to actually prevent breast cancer in the first place?

Unfortunately, prevention is not sexy.  Prevention doesn’t make anybody – especially corporations – wealthy.  Prevention isn’t easy, and its not convenient.  Prevention doesn’t happen overnight.  Prevention involves commitment and hard work and a long term vision.   The struggle with prevention touches all of the cornerstones of our culture: sex, money, convenience and instant gratification.

We all know that our health care system is broken, and tends to be more of a “sick care” system.  In the current model, Providers are not rewarded for promoting prevention, but instead find themselves prescribing costly imaging and cancer treatments.   Cancer, diabetes and heart disease would dramatically decrease if we practiced prevention.   Imagine if we replaced every pink ribbon with a picture of a vegetable and a pair of walking shoes.   Or if we incented women to make lifestyle changes and offered information about breast cancer prevention at our malls, grocery stores, libraries and in schools.  What if our health insurance actually paid for prevention?

And yet, we know that many cancers are the result of our lifestyle.   There is growing evidence that the choices we make everyday affect our health in profound ways.  Each of us has the power to prevent disease; but the problem is that many of us don’t know it.  Its time to take back our power.

It’s not easy to make changes in our lifestyle; but with determination and will, it can done.  The key is to empower women to understand that the choices they make everyday affect their health and their risk of breast cancer.  Through education and information about lifestyle choices, plus tools and strategies that can help integrate gradual changes, women and men will be motivated to make changes that are sustainable and will lead to less obesity, diseases like heart disease and diabetes and yes, less cancer.  We must demand it from the corporations, our legislators and government, and especially from ourselves.  We must change a health care system from one that rewards technology and sickness, to one that emphasizes prevention.  We must create a society and ultimately a lifestyle that allows us to adopt healthier lifestyles.

Here are a few ways to get started today:

Nutrition is a choice we make several times a day.  How much we eat and what we choose to put in our bodies has a powerful effect on our health.  Choose more whole foods and less processed foods.  Choose more vegetables and fruits and fewer carbs and starches.   We already know that the phytonutrients in fruits and vegetables are powerful tools against cancer.  These include broccoli, kale, blueberries, spinach, garlic and onions just to name a few.  Obesity increases risk of all cancers ; if you shed those extra pounds, your risk of breast cancer decreases.

Exercise is another way to prevent and reduce recurrence.    More and more research is showing that moderate exercise for at least 30 minutes a day can reduce the risk of a recurrence of cancer.  Walking is the best form of exercise and doesn’t cost anything, so get moving!  Even if you don’t lose weight, exercise helps to reduce your cancer risks.

Managing stress in our lives can help improve our body’s ability to resist cancer, since stress can weaken our immune system.  Tune into your body and understand how you manage stress.   Learn to meditate; find time for something you enjoy once a week and reach out to spend time with a friend.

Reducing Environmental Toxins.  It’s important to remember that the choices we make about our home cleaning products, water bottles, plastics, dry cleaning, and the personal-care items we choose also affect our health.  For more information about environmental toxins go to the Environmental Working Group site at www.ewg.org.

We all know that bad habits are hard to change.   But be patient with yourself:  the rewards will be not only realized in better health, but also in feeling better than you ever have before.  Continue to have regular mammograms and don’t forget to do your monthly breast exams, but also remember that each of us has the power to prevent cancer by the choices we make every day.  This October, I want to see more women empowered to make informed choices everyday that reduce their risk of breast cancer for not only themselves, but for their children and generations to come.

Posted in advocacy, Breast Cancer, Exercise, Nutrition | Tagged , , | 1 Comment

The Realities of the “Big C”

It wasn’t that many years ago that cancer was the elephant in the room and rarely discussed openly.  With over 12 million Americans diagnosed with cancer in this country, it is forcing it’s way into many living rooms, kitchen tables and television sets.  Showtime’s dramedy “The Big C” about Cathy Jamison, a middle age mother, wife, sister and teacher who is struggling to find her way after a stage 4  melanoma diagnosis, has recently captured my attention.

Laura Linney in The Big C

Cathy, brilliantly played by Laura Linney, spent the first season keeping the diagnosis from everybody while she contemplated what life really meant to her.   She and her husband separated, she had an affair, bought a red sports car and began plans to put the long desired swimming pool in the back yard.  She befriended the wacky neighbor across the street that she had never bothered to get to know, and discovered that she really liked her, quirks and all.

For the first time in her life, Cathy was living life intentionally and in the moment.   She visited acupuncturists and “bee healers” before deciding to tell her estranged husband, son and friends about her cancer.

The second season is where the show really dives into the realities of living with cancer. Cathy reunites with her husband and begins treatment that involves participating in a clinical trial.  Her husband is laid off from his job and he is forced to take a job in a retail store just so that he can get minimal medical benefits and pay some of the mounting health care bills resulting from being underinsured. Throughout it all, Cathy is trying to keep her job and make it through her treatments while hanging onto some semblance of hope that she may survive longer than expected.

Her teenage son is going through his own adolescent struggles with his identity as the kid whose mom has cancer (Cathy is a teacher at his school) and coming to terms with the idea that she may not live to see him graduate from high school.

Cathy befriends a fellow melanoma patient who is not faring as well as she is, but undeniably understands her journey.  She is supporting a brother with mental health issues, and is taking in one of her students who needs a home for last year of high school. She struggles to discipline a teenage son who is pushing his boundaries more than his teenage peers. The show also touches on the  struggle with sexual intimacy that affects many cancer survivors.

The realities of cancer are difficult and challenging, and can be different for everyone.  Although some of the side stories often feel more like distractions, many of the themes highlighted in the “Big C” realistically depict the challenges of living with cancer and its impact on loved ones, work and friends.   Fortunately for us, the story is not complete; there is plenty of fertile ground to cover in the next season and beyond.

Cancer changes not only the cancer patient and the survivor, but everyone around them.  Cathy is evolving into a new person as a result of her cancer experience.   She is living a life of more acceptance and non-judgment, all the while striving to live in the moment and deepen her connection to those around her.  She is working to strengthen her sense of gratitude.

For some, cancer is an opportunity to develop a profound sense of meaning, purpose and peace in their life – but it’s not easy.   It takes a will to not get lost in the despair and to try to see the good, the positive and to laugh at oneself along the way.

Ironically, in facing her own mortality, Cathy is feeling more alive than ever before.  That is a reality of cancer for which I am truly grateful.

 

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I’m a survivor! Now What?

In a fairly short amount of time, you have received a diagnosis, prognosis, and treatment.  Now what?  Well, what’s left? Staying healthy!  Many lifestyle changes play a role in the success of survivorship:   emotional support, nutrition, and exercise just to name a few.

Those who become diagnosed with cancer often find comfort and relief from a large support network made up of family and friends.  In many cases, these same family members and friends act as caregivers and offer medical care with the goal being improved quality of life.  Selecting your support system isHealthy Living important because these people will help you before, during and even after your treatment – ensuring you stay well.  Most importantly, they will help you deal with new emotions, attend support group meetings with you, and assist you in finding healthy ways to manage your stress.

Usually, finding a more holistic approach to their health helps survivors in a few ways.  A number of survivors attribute their success to dietary changes and mind-body medicine.  A healthy diet is one of the most significant natural approaches to fighting cancers.  Proper nutrition can help the body best attack cancerous cells, increase a patient’s strength and energy during chemotherapy or radiation therapy and improve someone’s quality of life. Meditation, long commended for its ability to help people manage pain and stress, may be beneficial for mesothelioma patients looking for holistic alternatives for treatment. Yoga, which combines meditation and gentle exercise, can give patients an outlet for their anxiety while improving their general health.

The Mesothelioma Center offers free literature and advocacy services for patients and families who have been affected by mesothelioma or other asbestos related diseases.  For additional information, visit www.asbestos.comFollow us on Twitter for daily updates on ways to stay healthy, and Like us on Facebook to engage with others in the cancer community by sharing resources.

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A Lesson in Gratitude

Remembering Emily

It’s been 4 years this week since the world lost an incredible light, Thankful Emily Jane Dade.

This week, I am remembering Emily by posting some of her writings (with her family’s permission) from the last few weeks of her life.  Her gratitude while facing death is awe-inspiring, and she continues to challenge me to practice gratitude in my life everyday.

 

May 15, 2007

My dear Tulips,

As I put my fingers to the keys, something tells me that this is going to be  the hardest post for me yet. I have so much to share, and I think this may be my last opportunity to do so. I’m getting so tired now. I think after this  post, I’ll pass the update torch on to my family, so that I can focus on  resting and preparing for my transition.

So where to begin? What to share with all of you, my precious tulips, who have  carried me through thick and thin, who have shared joy in my small victories, suffered with me in my times of greatest defeat. What mere words can possibly speak all the contents of my heart? I guess I’ll just open it up and see what comes out.

It’s been profound, going through this dying process around Mother’s day.  Anyone who knows me knows that being Alexander and Dorothy’s Mommy is EVERYTHING to me. The hardest part in my cancer journey has been, without a  doubt, the impact that I know it will have on them. And so, to celebrate Mother’s Day with my babies this year, knowing that it is the last year we will all be celebrating it together in body, that was very, very hard. I just want to grab hold of them and never let go. I know they will be ok. I do. With every fiber of my being, I know that they are in the BEST hands, that they have the BEST daddy, the BEST grandparents, the BEST family and friends, that they have  all the BEST tools to get through this in the least traumatic way possible. And I know with equal certainty that it is only my body that will be gone, that my spirit will still be alive, and will dwell in their hearts forever.

But it doesn’t make it hurt any less to know that it won’t be me tucking them in at night, blowing their sweet dreams into their sweet little ears.  That I won’t be at the next basketball game or gymnastics performance, cheering my heart out alongside the other moms. That I won’t be able to teach Dorothy about puberty, or to help Alexander figure out the mystery that is the female species. All the things that you need to have a physical body in order to do. That makes me very sad. Again, I know they are in the best hands. I know they’ll be ok. But I still wish it was gonna be me. My hands.

But, I trust in the Higher Power, God, the Universe. I know that there is a reason for this. I am not meant to know the reason yet, but I know there is one. I believe with all my heart that, as sad as it is, as much as I wish is wasn’t so, this is my path, this is my children’s path, this is my husband’s path, and all will be as it is supposed to be. And so, I allow myself to be sad, but I accept that it is supposed to be this way, and I trust that they will all be ok.

The last thing I want to share with you is my gratitude. This goes above and beyond those two little words, “thank you”. The two concepts aren’t even in the same ballpark. The gratitude I feel coursing through my heart is something that I don’t know if I can begin to describe. It’s not just about being grateful.  It’s not just a feeling. It’s like, it’s like a state of being. One that we can all strive for. We can find gratitude in every aspect of our lives. “Count your blessings” is so cliché, but the power it gives me to truly FEEL the gratitude for the innumerable blessings in my life, it’s unbelievable. To be facing death, and still be able to feel gratitude of this depth, it’s profound. And for that, I am truly grateful. I am THANKFUL. For each of you, even those of you I’ve never met. For the endless stream of love and support, friendship, camaraderie, light and prayers that you have shared, and continue to share, with me and my family. For sharing your selves with me.

For now, that’s all. I send you my love, my light, my joy, and my gratitude, every minute of every day…

Emily

Emily died at the age of 30 from breast cancer, but her spirit lives on in all of us, her Tulips.

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